Factors influencing psychosocial adjustment and quality of life in Parkinson patients and informal caregivers
Navarta-Sánchez MV (1), Senosiain García JM (1), Riverol M (2), Ursúa Sesma ME (3), Díaz de Cerio Ayesa S (4), Anaut Bravo S (5), Caparrós Civera N (6), Portillo MC (7).
(1) Faculty of Nursing, University of Navarre, Navarre, Spain.
(2) Department of Neurology, Clínica Universidad de Navarra, Navarre, Spain.
(3) Primary Health Care Center of San Juan, Navarre Service of Health-Osasunbidea, Navarre, Spain.
(4) Navarre Association of Parkinson's Patients, Navarre, Spain.
(5) Department of Social Work, Public University of Navarre, Navarre, Spain.
(6) Faculty of Law and Social Sciences, University of La Rioja, La Rioja, Spain.
(7) Faculty of Health Sciences, University of Southampton, Highfield, Southampton, SO171BJ, UK. M.C
The influence that social conditions and personal attitudes may have on the quality of life (QoL) of Parkinson's disease (PD) patients and informal caregivers does not receive enough attention in health care, as a result of it not being clearly identified, especially in informal caregivers. The aim of this study was to provide a comprehensive analysis of psychosocial adjustment and QoL determinants in PD patients and informal caregivers.
Ninety-one PD patients and 83 caregivers participated in the study. Multiple regression analyses were performed including benefit finding, coping, disease severity and socio-demographic factors, in order to determine how these aspects influence the psychosocial adjustment and QoL in PD patients and caregivers.
Regression models showed that severity of PD was the main predictor of psychosocial adjustment and QoL in patients. Nevertheless, multiple regression analyses also revealed that coping was a significant predictor of psychosocial adjustment in patients and caregivers. Furthermore, psychosocial adjustment was significantly related to QoL in patients and caregivers. Also, coping and benefit finding were predictors of QoL in caregivers but not in patients.
Multidisciplinary interventions aimed at improving PD patients' QoL may have more effective outcomes if education about coping skills, and how these can help towards a positive psychosocial adjustment to illness, were included, and targeted not only at patients, but also at informal caregivers.
CITATION Qual Life Res. 2016 Jan 8.