Scientific publications

Development of a scale to gain insight into the experience of living with chronic heart failure: The UNAV-Experience of Living with Chronic Heart Failure Scale

Apr 16, 2024 | Magazine: Anales del Sistema Sanitario de Navarra

Maribel Saracíbar-Razquin  1 , Amparo Zaragoza-Salcedo  2 , Jesús Martín-Martín  3 , José Luis Cobo-Sanchez  4 , Santiago Pérez-García  5 , Aurora Simón-Ricart  6 , Pilar Ara-Lucea  7 , Leticia Jimeno-San Martín  8 , Montserrat Ducay-Eguillor  9 , Noelia De La Torre-Lomas  10 , Jesica Pérez-Herreros  11 , Maddi Olano-Lizarraga  12


Background
To date, there are no tools for the nursing staff to gain systematic insight on the experience lived by patients with chronic heart failure. The objective of this study was to develop a scale for this purpose.

Methods
The study was conducted between January 2018 and December 2020 in three Spanish hospitals. The process described by DeVellis was used for the development of the scale. The items were built based on a phenomenological study and a systematic review of the literature.

Next, feedback from a panel of experts was obtained, the scale was administered to a sample of patients with chronic heart failure, and a cognitive interview and an observational study were conducted to create the final version of the scale.

Results
The first version of the scale had in seven domains and 76 items. After its evaluation by a panel of experts, it was reduced to a second version with six domains and 55 items.

Following the administration of Version 2 to 17 patients (58.8% male, mean age 59.53, 70.6% classified as NYHA functional class II), five items were modified and two eliminated. Thus, the third version of the UNAV-CHF Experience Scale was composed of six domains and 53 items.

Conclusions
This study presents the development of the UNAV-experience of living with chronic heart failure scale. It is an original and novel instrument that allows systematically explore this experience. A larger-scale study is necessary to confirm the validity of our scale.

CITATION  An Sist Sanit Navar. 2024 Apr  6;47(1):e1071. doi: 10.23938/ASSN.1071