Implementation of a multidisciplinary psychoeducational intervention for Parkinson's disease patients and carers in the community: study protocol
Navarta-Sánchez MV (1), Ursua ME (2), Riverol Fernández M (3), Ambrosio L (1), Medina M (2), Díaz de Cerio S (4), Álvarez MJ (5), Senosiain JM (1), Gorraiz A (4), Caparrós N (6), Anaut S (7), Martín-Lanas R (8), Recio M (3), Portillo MC (9).
(1) Faculty of Nursing, University of Navarre, C/ Irunlarrea, s/n, Edif. De los Castaños, 31008, Pamplona, Navarre, Spain.
(2) Primary Health Care Center of San Juan, Navarre Service of Health-Osasunbidea, Plaza Obispo Irurita s/n Planta Baja, 31011, Pamplona, Navarre, Spain.
(3) Department of Neurology, Clínica Universidad de Navarra, Avenida Pio XII, 36, 31008, Pamplona, Navarre, Spain.
(4) Navarre Association of Parkinson's patients, C/ Aralar 17, 31004, Pamplona, Navarre, Spain.
(5) Public University of Navarre, Campus de Arrosadia, s/n, 31006, Pamplona, Navarre, Spain.
(6) Faculty of Law and Social Sciences, University of La Rioja, C/ Cigüeña 60, 26004, Logroño, La Rioja, Spain.
(7) Department of Social Work, Public University of Navarre, Campus de Arrosadia, s/n, 31006, Pamplona, Navarre, Spain.
(8) Department of Psychiatry and Medical Psychology, Clínica Universidad de Navarra, Avenida Pio XII, 36, 31008, Pamplona, Navarre, Spain.
(9) NIHR CLAHRC Wessex, Faculty of Health Sciences, University of Southampton Highfield Campus, University Road, Southampton, SO17 1BJ, UK.
Parkinson's disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them.
The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson's disease and the quality of life in patients and family carers in a Primary Care setting.
This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson's disease and 100 family carers will be recruited and assigned to two groups.
The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention.
The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development.
An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions.
CITA DEL ARTÍCULO BMC Fam Pract. 2018 Apr 5;19(1):45. doi: 10.1186/s12875-018-0730-9